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Privacy Notice While performing at Glastonbury on Saturday, singer Lewis Capaldi made headlines when he headed to The Pyramid Stage to perform his back catalogue of ballads. However, towards the end of his set, Lewis, who was diagnosed with Tourette’s syndrome last year, could be seen struggling with his vocals. Speaking to the crowd, 26 year old Lewis said: “I’m going to be honest everybody, but I’m starting to lose my voice up here, but we’re going to keep going and we’re going to go until the end. I just need you all to sing with me as loud as you can if that’s OK?” In response, the crowd rallied around the singer as they belted out his song Someone You Loved in one proved to be one of the weekend’s most powerful performances.
Lewis Capaldi looked emotional when the Glastonbury crowd rallied in support
(Image: Leon Neal/Getty Images)
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The sweet moment Glastonbury fans sing for Lewis Capaldi amid Tourettes struggle
And for Sarah Sharp, the performance was particularly emotional as two of her children – 16 year old Harrison and Hayden, 12 – are diagnosed with Tourette’s. Here, 37 year old Sarah from East Sussex speaks to OK! about how it felt to watch Lewis take on The Pyramid Stage: “When I first saw the clip, I went cold, I had goosebumps and I felt really emotional. I don’t think Lewis realises quite what he is doing right now for the Tourette’s community,” she says. “I felt so proud of him at that moment. For a lot of people with Tourette’s or tics, it takes them years to be able to accept it and some adults never do.” It’s been 10 years since Sarah’s son Harrison was diagnosed with Tourette’s after receiving a diagnosis when he was six years old. Hayden meanwhile was diagnosed two years ago when he was 10.
Sarah says she was left “emotional” after watching Lewis at Glastonbury
(Image: Supplied)
In the UK, there are over 300,000 children and adults living with tic disorders, though Sarah says that the lack of media representation meant that Harrison’s diagnosis came as a shock. “When my elder son was diagnosed, we knew nothing about Tourette’s. We only knew what the media really shows you and that is a condition that causes you to swear,” she explains. “When he was diagnosed, it came as a big shock because he didn’t do that and I thought it couldn’t be right. I definitely went through a grieving process, I’m not going to lie.” Presenting itself in different forms and with varying degrees of severity, Tourette’s syndrome is a neurological disorder that causes people to make involuntary movements and sounds called tics. In turn, Sarah, who is the Founder of Tictock Therapy C.I.C and Tictock Therapy and Coaching LTD, notes that Tourette’s presents itself differently in each of her sons.
Sarah founded Tictock Therapy C.I.C and Tictock Therapy and Coaching LTD after her sons were diagnosed with Tourette’s syndrome
(Image: Supplied)
“Harrison’s tics have always been predominantly more motor than vocal. These have ranged from small sniffing and blinking right up to his whole body being stuck in a contorted position for a prolonged period of time. He’s had sores and sprains and has had to go to school and flip flops because he couldn’t wear his shoes because of the rubs,” she explains. “Hayden on the other hand has had more vocal tics with certain sentences, words and phrases.” As a result, having watched Lewis Capaldi on her TV screen, Sarah was left feeling emotional when she saw the crowd take over from Lewis’ vocals to sing his ballad Someone You Loved. “Lewis really is an inspiration because he’s accepted the diagnosis. He’s embraced it and he’s held his head up high and has continued to perform in front of thousands of people,” she says. “I think he’s absolutely incredible. I have so much respect for him. I really think it’s going to go down in history.”
Sarah’s elder son Harrison was diagnosed with Tourette’s when he was six years old
(Image: Supplied)
Meanwhile Sarah’s son Harrison also saw the clip and had his own response to the Scottish singer. “When he watched it, he said ‘that’s my man’. Harrison always says that he tics loud and proud, so to see Lewis on stage at Glastonbury was a real moment.” While doting mum Sarah admits that people’s response to Tourette’s “depends on who you’re talking to”, she hopes that the warm response generated by the Glastonbury crowd as well as social media signals that we are becoming more accepting as a society. “It’s really hard to get individuals to tic loud and proud, so to speak. People are ashamed because it’s still a taboo. It’s a negative in so many people’s eyes,” she says. “To see Lewis on stage and to see everyone at Glastonbury wrap their arms around him in acceptance and support is a monumental moment. The more that people open up about it, the more we can progress. Lewis is making a huge difference.” Sarah is the Founder of Tictock Therapy C.I.C and Tictock Therapy and Coaching LTDStory SavedYou can find this story in My Bookmarks.Or by navigating to the user icon in the top right.Follow OK! MagazineFacebookTwitterCommentMore OnReal LifeHealthGlastonbury
